Key Adolescent Literature

This is a list of key adolescent literature and is a resource that might be useful to you if you are at the start of your research journey and still need to write your literature review or study motivation.

Adolescent Health – General Background.

Lancet Commission on Adolescent Health and Wellbeing – 2016
Patton GC, Sawyer SM, Santelli JS, Ross DA, Afifi R, Allen NB, Arora M, Azzopardi P, Baldwin W, Bonell C, Kakuma R, Kennedy E, Mahon J, McGovern T, Mokdad AH, Patel V, Petroni S, Reavley N, Taiwo K, Waldfogel J, Wickremarathne D, Barroso C, Bhutta Z, Fatusi AO, Mattoo A, Diers J, Fang J, Ferguson J, Ssewamala F, Viner RM.
Our future: a Lancet commission on adolescent health and wellbeing. Lancet. 2016 Jun 11;387(10036):2423-78. doi: 10.1016/S0140-6736(16)00579-1.

WHO guidance on Global Accelerated Action for the Health of Adolescents (AA-HA!) – 2017
https://apps.who.int/iris/bitstream/handle/10665/255415/9789241512343-eng.pdf

Building our youth for the future
Bekker LG, Johnson L, Wallace M, Hosek S. Building our youth for the future. J Int AIDS Soc. 2015 Feb 26;18(2 Suppl 1):20027. doi: 10.7448/IAS.18.2.20027. eCollection 2015.

Adolescents and young key populations
Bekker LG, Hosek S. HIV and adolescents: focus on young key populations. J Int AIDS Soc. 2015 Feb 26;18(2 Suppl 1):20076. doi: 10.7448/IAS.18.2.20076. eCollection 2015.

*UNAIDS publishes annual reports on updated global HIV/AIDS epidemiology, where they also highlight key challenges among at risk populations. Data used for research literature reviews and reports should always reference the latest figures. The 2021 update can be found here.

Biomedical and behavioural interventions to promote HIV prevention amongst adolescents

Overview of Adolescent HIV Prevention
Pettifor A, Stoner M, Pike C,  Bekker LG. Curr Opin HIV AIDS. 2018 May;13(3):265-273. doi: 10.1097/COH.0000000000000453

UCHOOSE – Acceptability and preference of HIV prevention methods
Gill K, Happel AU, Pidwell T, Mendelsohn A, Duyver M, Johnson L, Meyer L, Slack C, Strode A, Mendel E, Fynn L, Wallace M, Spiegel H, Jaspan H, Passmore JA, Hosek S, Smit D, Rinehart A, Bekker LG.  
An open-label, randomized crossover study to evaluate the acceptability and preference for contraceptive options in female adolescents, 15 to 19 years of age in Cape Town, as a proxy for HIV prevention methods (UChoose).  JInt AIDS Soc. 2020 Oct;23(10):e25626. doi: 10.1002/jia2.25626. 

PLUSPILLS – Oral PrEP for HIV in adolescents
Gill, Katherine et al. Acceptability, safety, and patterns of use of oral tenofovir disoproxil fumarate and emtricitabine for HIV pre-exposure prophylaxis in South African adolescents: an open-label single-arm phase 2 trial. The Lancet Child & Adolescent Health, Volume 4, Issue 12, 875 – 883 

PrEP Scale up in Southern Africa
Ahmed N, Pike C,  Bekker LG. . Curr Opin Infect Dis. 2018 Nov 16. doi: 10.1097/QCO.0000000000000511. [Epub ahead of print]

Adolescent friendly services

What do adolescents want in a sexual health service?
Smith P, Marcus R, Bennie T, Nkala B, Nchabeleng M, Latka MH, Gray G, Wallace M, Bekker LG. 
What do South African adolescents want in a sexual health service? Evidence from the South African Studies on HIV in Adolescents (SASHA) project. S Afr Med J. 2018 Jul 25;108(8):677-681. doi: 10.7196/SAMJ.2018.v108i8.13013.

WHO guidelines on adolescent friendly healthcare services (2012)
Available online: https://apps.who.int/iris/bitstream/handle/10665/75217/9789241503594_eng.pdf

Lancet Commission on the integration of HIV services within a universal healthcare framework
Bekker LG, Alleyne G, Baral S, Cepeda J, Daskalakis D, Dowdy D, Dybul M, Eholie S, Esom K, Garnett G, Grimsrud A, Hakim J, Havlir D, Isbell MT, Johnson L, Kamarulzaman A, Kasaie P, Kazatchkine M, Kilonzo N, Klag M, Klein M, Lewin SR, Luo C, Makofane K, Martin NK, Mayer K, Millett G, Ntusi N, Pace L, Pike C, Piot P, Pozniak A, Quinn TC, Rockstroh J, Ratevosian J, Ryan O, Sippel S, Spire B, Soucat A, Starrs A, Strathdee SA, Thomson N, Vella S, Schechter M, Vickerman P, Weir B, Beyrer C. . Lancet. 2018 Jul 28;392(10144):312-358. doi: 10.1016/S0140-6736(18)31070-5. Epub 2018 Jul 20. Review. No abstract available.

Adolescent experiences with healthcare access
Ritchwood TD, Ba A, Ingram L, Atujuna M, Marcus R, Ntlapo N, Oduro A, Bekker LG. Community perspectives of South African adolescents’ experiences seeking treatment at local HIV clinics and how such clinics may influence engagement in the HIV treatment cascade: a qualitative study. AIDS Care. 2019 Aug 11:1-6. doi: 10.1080/09540121.2019.1653442. [Epub ahead of print]

Retention in care of adolescents living with HIV
Ritchwood TD, Malo V, Jones C, Metzger IW, Atujuna M, Marcus R, Conserve DF, Handler L, Bekker LG. Healthcare retention and clinical outcomes among adolescents living with HIV after transition from pediatric to adult care: a systematic review. BMC Public Health. 2020 Aug 3;20(1):1195. doi: 10.1186/s12889-020-09312-1.

Editorial on elements required in an adolescent healthcare service
Pike C, Celum C, Bekker LG. Adolescent healthcare: I’m Lovin’ it. South Afr J HIV Med. 2020 Oct 21;21(1):1147. doi: 10.4102/sajhivmed.v21i1.1147. PMID: 33240538; PMCID: PMC7670027.

Ethico-legal considerations for involving adolescents in clinical research

Ethical issues in adolescent HIV research in resource-limited countries.
Bekker LG, Slack C, Lee S, Shah S, Kapogiannis B. J Acquir Immune Defic Syndr. 2014 Jan 1;65 Suppl 1:S24-8 

Ten Recommendations for Adolescent Studies in South Africa.
Strode, A., & Slack., C. (2020). Ten Recommendations for Adolescent Studies in South Africa. HIV AIDS Vaccines Ethics Group, University of KwaZulu-Natal.
Available online: http://www.saavi.org.za/haveg.html

Feasibility of conducting HIV vaccine trials in adolescents
Wallace M, Middelkoop K, Smith P, Pike C, Bennie T, Chandia J, Churchyard G, Gray G, Latka MH, Mathebula M, Nchabeleng M, Roux S, Slack C, Strode A, Bekker LG.
Feasibility and acceptability of conducting HIV vaccine trials in adolescents in South Africa: Going beyond willingness to participate towards implementation. S Afr Med J. 2018 Mar 28;108(4):291-298. doi: 10.7196/SAMJ.2017.v108i4.12909 

Adolescent participatory action design: 

Adolescent participation in research: Rationale and Next Steps (UNICEF)
Ozer EJ, Piatt AA. Adolescent participation in research: Innovation, rationale, and next steps. Innocenti Research brief: 2017-07. UNICEF Office of Research.

Youth-Led Participatory Action Research: Overview and Potential for Enhancing Adolescent Development
Online available: here.

Youth-Led Participatory Action Research: Developmental and Equity Perspectives
Ozer EJ. Youth-Led Participatory Action Research: Developmental and Equity Perspectives. Adv Child Dev Behav. 2016;50:189-207. doi: 10.1016/bs.acdb.2015.11.006. Epub 2016 Jan 25. PMID: 26956074.

Youth Participatory Approaches and Health Equity: Conceptualization and Integrative Review
Ozer EJ, Abraczinskas M, Duarte C, Mathur R, Ballard PJ, Gibbs L, Olivas ET, Bewa MJ, Afifi R.
Youth Participatory Approaches and Health Equity: Conceptualization and Integrative Review. Am J Community Psychol. 2020 Dec;66(3-4):267-278. doi: 10.1002/ajcp.12451. Epub 2020 Sep 24. PMID: 32969506.

Implementation Science

UK Medical Research Council – Developing and evaluating complex interventions (2020 Update – see previous 2000 and 2008 versions as well)
Shahsavari H, Matourypour P, Ghiyasvandian S, Nejad MRG.
Medical Research Council framework for development and evaluation of complex interventions: A comprehensive guidance. J Educ Health Promot. 2020;9:88. Published 2020 Apr 28. doi:10.4103/jehp.jehp_649_19

Fogarty International Toolkit on Implementation Science Methodologies and Frameworks
Available online: here.

BY YOLISWA NTSEPE (MA, PhD)
ADOLESCENT PROGRAMMES MANAGER

UPDATED NOV 22, 2023

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REFERENCES & ADDITIONAL RESOURCES: